“When discussing chemotherapy side effects often you will
hear the word nadir, mainly in
reference to the blood counts, particularly white blood cell count and platelet
count. Nadir basically means low point.”
While I think I am a few days away from my white blood cell
count nadir for this cycle, there is no doubt in my mind that today I hit my
emotional nadir. It began with a
very simple error in assumption.
Bob borrowed my computer to make sure the projector he needed to use for
a power point presentation this evening worked on a mac. (We are a mixed marriage - he is a PC user and I hardcore
mac.) He is somewhat clumsy
negotiating a mac, and accidently touched the microsoft word icon instead of
the powerpoint icon. The document
I had been working on popped up, and when he went to close it he tapped “do not
save changes.” The problem was, I
had never saved the document at all.
So one key stroke took away everything I had written over the past few
days. Normally, I “save”
compulsively. However, the last
few days have been really, really, hard and I only managed to peck out a
sentence or two before needing to retreat to the couch. While what was lost was less than a
page long, losing it sent me completely over the edge. Those few paragraphs had documented my
lived experience of the hardest days following chemotherapy. While it is completely irrational, on
an emotional level taking away my written record of the experience deleted the
“proof” that the experience really happened.
I believe our memories are selective. This cycle, these really bad days felt
worse than the really bad days of the last two cycles. But I don’t really know because I don’t
have clear memories of those days, and did not try to capture the essence of
those worst days. I just wanted to
survive them and move on. And in
the past, that is what I did.
However, this time, during the worst of it – I tried to write about
it. And that is what I lost.
I am not going to go back and try to remember or recreate
that document. It would feel
forced and artificial. I am going
to do what I always do – keep moving forward. In the past it felt more
important to document the better days.
I knew during the bad days I would need documentation that it all gets
better, and the “proof” that there are good days – lots of them – before the
next cycle straps me once more on to this freaking somatic amusement park ride.
And let me be very clear. I hate amusement park rides.
Right now I am thankful for proof of the good days. Today is only Tuesday but I hold on to
my past experience that by this weekend, I will be feeling better. During my lowest moments, I listen to
Belleruth Naparstek’s recorded affirmations. “I know there are times when I become worried, fearful,
despairing, sad or angry and I acknowledge and accept what I feel as my inner
truth of the moment.” While there
is a level of consolation in knowing things will get better, I still need to
live in and through this moment.
And this moment is dominated by sadness and anger.
When I realized my last document was really lost, I started
screaming, yelling and crying hysterically. It was one of those “straw that broke the camel’s back”
moments. In the past few months I
have lost so much more than my left breast. I have lost my sense of self as a
strong and healthy person. I have
lost my ability to dream, make plans or feel confident about the future. I sincerely hope this is my lowest
point, my nadir. It is no place I
care to dwell.
Sweetie, I feel for you. Hang in there. I know it's hard to imagine the zenith, but it's there, ahead of you.
ReplyDeleteThank you for your candor and your emotional honesty. I can't help but think that the universe intended for that document to be lost. Not that you shouldn't record the absolutely awfulness - yes, you should. But perhaps just for this week, the absolute awfulness was meant to disappear - whoosh - into the ether. As you know too well, sometimes things are lost.
ReplyDeleteThinking of you -
Carolyn