Saturday, February 8, 2014

Cancerversary

One year ago today I received the phone call informing me I had invasive lobular breast cancer.  This makes today my “cancerversary.” Researchers have defined trauma as “an event that happens after which everything is different,” and being diagnosed with cancer certainly fit this definition. 

Along with the diagnosis came the permission to quit trying to be Wonder Woman.  Not that I was ever very successful at being Wonder Woman, but I had a long history of running myself ragged trying to fulfill the expectations of others. 

Being diagnosed with cancer certainly knocked that out of me. 

I stumbled across the beginning of never finished and never sent letter to my friend Michal who lives in Israel.  The letter was dated December 2012 and written about six weeks before my diagnosis.  In it I tell her, “I am coming into the end of what has been an extraordinarily hard semester.  Somewhat like watching storm clouds gather, I knew it was going to be a rough one, but this surpassed my expectations. It was the convergence of constant crisis management both at work and at home which brought me to my current state emotional and adrenal exhaustion. I think the last time I wrote was over the summer.“

The writing I refer to in the last sentence was my personal writing practice not a specific correspondence.  The year that I was on sabbatical and traveling, I kept up a very steady writing practice but the minute I was back home I wafted into my futile wonder woman mode and my writing drifted by the wayside.  I had discovered that writing was a life affirming practice that helped me to process my lived experience and negotiation difficult situations in my life but I could not find a way to make it a priority in my life. 

When I was diagnosed with breast cancer I knew I needed to start writing again.  On a gut level I knew it would be key to my survival.   And so I wrote through the good and the bad days, through surgeries and chemotherapy treatments, from February through August.  My last entry, dated August 24th 2013, joyfully announced I was going back to work on a full-time basis for the fall semester.  The school year began and I never wrote another word.   

Which is not to say I completely slid into old habits.  I did not.  There is a joke in meditation circles that goes, “Don’t just do something, stand there. ”  This, along with my personal motto, “Resist urgency,” became the guiding principals for the road forward.  I tried to pause before agreeing to take on any additional responsibilities.  I signed up and attended an eight-week course in “Mindfulness-based Stress Reduction (MBSR).” My friend Klea and I attended a “Yoga-Care” class throughout the fall semester.  I even traveled to the Kripalu Center for Yoga and Health in Western Massachusetts for a three-day workshop entitled, “Radiance: Building an Amazing Life after Cancer.” These things may not seem to be outrageous actions but for me they were radical acts of self-care and compassion that never would have happened in my before cancer  (BC) days.  I had “planned” to take the MBSR course for at least five years but was always “too busy.”  I had dreamed of going to Kripalu for at least as long, but could never justify the expense and or missing a day or two (gasp!) of the semester.   BC it was easy for me to give advice about the necessity of taking care of yourself if you are trying to care or attend to others – the whole putting on your own oxygen mask before attempting to help others.  I totally got it on a theoretical level but I just could not make it an actual practice in my life.  Cancer changed that. 

One of my teachers at Kripalu defined hope as “seeing reality but still seeing the next step to a slightly better future.”  I like that definition, and by that definition I am a very hopeful individual.

I am part of a twelve week LIVESTRONG program at the YMCA in Mankato.  I have always been at home in the dance studio or in a Yoga or Pilates class but put me in a room with a bunch of treadmills and elliptical trainers and I want to run screaming out of there as quickly as possible.   However, part of my “slightly better future” involves a stronger cardiovascular system and since it is the winter of 2014 and I live in Minnesota (aka Polar Vortex central), I am working on developing a new relationship with exercise machines.  This relationship has a long way to go but in this arena I also remain hopeful.

A number of years ago I read a book by Sara Lawrence-Lightfoot titled, The Third Chapter: Passion, Risk and Adventure in the 25 years after 50.  In it she writes, “We must develop a compelling vision of later life: one that does not assume a trajectory of decline after fifty, but one that recognizes it as a time change, growth, and new learning; a time when ‘our courage gives us hope.’”  During the past year I have realized I have an impressive array life skills that helped me negotiate life in the after diagnosis lane.  While the details are still unclear I realize the third chapter of my life will involve helping other women negotiate this new terrain.

I started chemotherapy on April 18th, 2013, which means I only have about three more “Herceptin” treatments left and if all goes well somewhere around the middle or end of April I will have my trusty purple power port, Violet, removed.  Violet and I have had a great run together but I am ready to move on and celebrate many more cancerversaries.